Emphasizing Ability with Josiah

Narrator: Doctors didn’t know if Josiah Ives
would make it to full term and he has faced many health and
developmental challenges ever since. But today he’s just like every other
five-year-old wanting his parents (Josiah indistinct) William: He was being Tom and Jerry. Narrator: Josiah, sometimes accompanied by his
younger brother Isaiah benefits from occupational and speech
therapy with Easter Seals Crossroads Josiah was diagnosed with Noonan
syndrome and has delayed speech and motor skills,
but his parents know how lucky they are. Amanda: When I was pregnant with him at 12 weeks, they did an ultrasound and found that he had a cystic hygroma. They told us then that he would succumb to the cyst. William: They actually told her that within the
within the next two weeks he was gonna . . . Amanda: die. Narrator: After he was born, Josiah had severe digestive issues and
had to be fed through a gastronomy tube. William: And we had to feed him and nobody slept at all at night, so we did it in shifts. Narrator: As Josiah grew, his parents knew they would need help. Theresa: Well, he actually started with one of our therapists with early intervention services in his
home and then when he turned three he decided to come here to our south side
office. And we will stay with him until his
receptive and expressive language skills as well as his feeding are perfect. Laura: When we first meet with families, it’s beginning a communication of what the family needs. what are the issues they are seeing at home at school, what would they like
to see their child develop, what can be easy, what can we do to kinda help make their
lives easier and help the child better function during the day. Amanda: The majority of his words were dah, Everything was dah, or dah- ah. Once we started with Easter Seals, Miss Theresa has been wonderful. She’s really him a lot. William: About every Wednesday or Tuesday afternoon, it’s something new. He’s learned a new word or he is trying something new to eat. Amanda: He is so much more than the doctors ever gave us credit for. And I really feel like it is with the help of Easter Seals. of Easter Seals. with Theresa and Laura, what they do with him. Laura: I don’t know if there is one specific moment that stands out when Josiah has made some huge progress, but it’s like each time where you see the joy he is getting in the play and that now he can hang on the trapeze bar for 7 seconds instead of 3 seconds and he is so proud of himself for meeting that goal. Josiah: Let’s do that again. Laura: Okay, let’s do that again. William: You know, I think they are bringing him out,making him more of a little boy. To where he is not, we’re not focusing on his disability. we’re focusing on his abilities. Laura: And he’ll ask me like, if I am talking to mom, Miss Laura, I need my my worksheet. I’m ready to get to work. He’s motivated, he’s ready to work and he pushes
himself to keep going further and you can just kinda see the
enjoyment that he gets by having more strength, by having more coordination so that he can play harder and faster
and longer and keep up with peers. Theresa: He has such a way about him. He’s always excited he’s coming and ready to work. He loves to play so it’s definitely helpful
but I can interject my lesson into his play. Josiah: I love you, mama. Theresa: He is just a fun, vibrant, and exuberant little boy. Amanda: He loves dinosaurs and animals. More emphasis on the dinosaurs. He is loving. William: He’s a boy. Through and through. (Boys playing and laughing in the background) Amanda: Ssshhhh William: See. See that’s the thing right there that’s
priceless because he wasn’t supposed to be here. And that, you know, some days I’ll just sit and I break down and cry Because the Lord let us know him.

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